Just a quick update that Katia has recovered quickly and with a few minor issues like a morphine rash and thrush in her mouth but no major problems, clear lungs, no infection, breathed on her own right away:). We are so thankful for the Lord's care and protection and grateful for your prayers.
I love rubbing noses with her now. No tape or tube in the way, and teaching her the English word "nose".
We are at my niece's quietly convalescing, discharged from the hospital last night.
While very thankful for the tube that has fed Katia for the last 8 years, we are thankful that it has been replaced by a tube directly into the stomach. We are praying that this will alleviate many of her other problems.
Katia began to have a few seizures in the night. She had a fever, a reaction to the morphine, and was extremely dry. After her NG tube was removed, she began having more and more seizures until they were almost without stopping again.
After receiving various treatments and rescue medication for the seizures, she slept and is sleeping now. Her surgeon explained that vagus nerves run along the esophagus and these were very messed with yesterday and can cause the autonomic problems that she had today. It could also be from being overwhelmed by the stress of surgery, pain and medications. But he is pleased by her progress and is optomistic for her continued progress.
She has managed to keep all of the staff on their toes today as well as her parents who are grateful to be at this place.
For I know the plans I have for you,” declares the Lord , “plans to prosper you and not to harm you, plans to give you hope and a future. Then you will call on me and come and pray to me, and I will listen to you. You will seek me and find me when you seek me with all your heart. (Jeremiah 29:11-13 NIV)
When our time came, we met our wonderful surgeon, anesthesiologist residents and some great nurses. Just before they wheeled her down the hall away from us, as a family we put our hands on her and prayed that God would care for her through the hands I these doctors. The surgery took approx 2 hours, and according to Dr Klein was straightforward and didn't expect any complications (answer to prayer!). There was a possibility that she would be transferred to ICU for recovery if they had to intubate her, but the decision was overturned and she went to a regular room where she slept with mom. Yay!
Katia, a glimpse...
In just about 8 hours, Katia will be undergoing surgery for the placement of a g tube into her stomach for feeding and the removal of the ng tube that has been her feeding method through her nose and down her throat for 8 years. She is sleeping peacefully beside me on her little mattress as I write this. When I changed her tube tonight, I realized that this is a huge milestone in her life. This tube has harbored bacteria and allowed infections of ears, sinus and even pneumonia's. It has maybe contributed to the severity of her reflux which causes her to breathe in little bits of stomach acid or food.
Like an onion, Katia's issues will be addressed layer by layer.
When we first came home, Katia's seizures were the main problem but many other of her needs began to be explored and will be addressed in another few months. But her second big issue was her malnutrition and feeding. Her seizures are fairly well controlled now and she is no longer malnourished! Yay...she has put on 12 pounds since we were in the Ukraine.
With seizures controlled, with clear lungs and with food and fat reserves, Katia can have the g tube surgery along with the wrapping of the stomach around the esophagus to prevent reflux.
But of course, I can't explain it to her and properly prepare her for what will happen tomorrow and the pain she will wake up feeling. Our dear Russian speaking friend told her all about it in Russian, we just don't know what she understands of any language.
Please pray for her, that she will be comforted and protected by God and that the surgery will be very successful. Pray for the needs of all of our children as they will be putting in some long days at the hospital. Thanking you in advance for your willing prayers with us for her.
Next layer, joints!